Uncommon Illness Day, to be celebrated later this month on February 28, turns the highlight on the tens of millions of people that reside with uncommon circumstances. However what are you able to do to indicate your help? We requested leaders in affected person advocacy to supply concrete strategies. Right here’s what they mentioned:
Tony Castaldo, President & CEO, U.S. Hereditary Angioedema Affiliation (HAEA) and CEO, HAE Worldwide
Decide any uncommon illness, go the advocacy group’s web site and skim the riveting tales of people that, regardless of the impediments brought on by their situation, make a distinction by fiercely advocating for medical growth analysis, resulting in lifesaving and life-giving therapies.
